I know regular reader's of this blog have wondered what the heck is going on with the lack of regular posts the past few months. Here is the ugly truth.
Our family has been struggling with so many emotions as we deal individually with sweet Elijah's journey to wellness. Posting about gardens, projects around the house, cashing in on deals at the grocery and such as that seems so trivial in the scope of life for us right now. Nothing in our lives are more important than this sweet little boy.
In our day to day lives we try to keep it normal....whatever in the hell that is now days. Elijah is always on each and every one of our minds and hearts constantly. His little brother Sam, Mommy, Gigi, Pappy and of course Aunt Julie Lord it is just so hard to keep it together and "normal".
In the past few months two of Elijah's friends he has meet on this journey have lost their battle. Just a few weeks back another child that he and his family have befriended was sent home with hospice. We of course have embraced theses families too, rejoiced in the little victories and cried over the not so good news.
With the passing of each of these children our world is turned up side down. It's hard to stay focused on the every day tasks some days when we share in their devastating pain.
Today we have been hit with a double blow.
DD#3 had a follow up visit to our family Dr. this morning. They sent her back to ER for yet another transfusion. Since her release from the hospital on Saturday she has lost 2 pints of blood. They can find on internal bleeding nor is she bleeding out.
Just seconds after talking to DD#3 reassuring her the kiddo's were fine with me just take care of herself we got heart stopping news.
Sweet Elijah has been removed from the trial at Emory Hospital due to his declining health.
Over our lifetime we have faced this nasty disease with too many friends and family members. Transitioning into the home God has waiting for us all in heaven with an adult is one thing but with a child......
Please say an extra prayer tonight for Elijah as well as his Mommy, family, and friends. Our faith is strong, but our hearts are broken.